Empowering Parental Caregivers: ‘It’s a safe space for parents to talk about what’s on your mind’
Our new support group is a virtual safe haven for parents who are caregivers of children of all ages with SCI/D or other mobility disorders.
Personal Care for All Is Possible: A Disability Rights Perspective
That’s what I am fighting for. There is a lack of affordable personal care for so many in the wheelchair community.
Best tips and strategies for finding and hiring PCAs
Finding and hiring PCAs is hard. Our Care Support Working Group makes it easier.
7 Suggestions from Families of Newly Spinal Cord Injured People
If your family member has experienced a spinal cord injury, you may be confused and a little scared. In a blink, life has changed. There are many emotions — concern for your loved one, decision stress, grief, and feeling overwhelmed.…
Growing Stronger Together on the Frontlines of Caregiving
I was fixed up on a date with a pretty girl who used a wheelchair for mobility. I had no immediate experience with disability to that degree up to that point ...
“Build Back Better” Caregiving Measures Ensure a Brighter Future for People with Disabilities
President Biden’s pandemic recovery plan correctly positions caregiving as an essential building block of our economic future. His proposal has the potential to transform the future for people with disabilities
Essential Truths of Caregiving - The Living List
Donna Thomson has been a caregiver for 30 years. She writes about her experiences on her blog, The Caregiver’s Living Room. In one of her posts, she discusses the “essential truths of caregiving.” Donna and one of her fellow longtime…
Struggling with Serendipity Memoir By Cindy Kolbe
Cindy Kolbe has been a life-long disability advocate, even before her daughter Beth sustained a spinal cord injury in a car accident. Cindy is a writer and her articles have been published in many media platforms. She hopes that her…
Caregiving - Meeting Fear With Courage
Donna Thomson is a long time caregiver who writes about her experiences on her blog The Caregiver’s Living Room. In a recent post, Donna tells about a conversation she had with a friend about meeting fear with courage in caregiving.…
Advice For Working With Caregivers
Ali Ingersoll, a C6 quadriplegic, says she has had some pretty phenomenal caregivers. However, she has also experienced some not so phenomenal ones. Ali talks about her journey with live-in caregivers, the good, the bad, and the ugly. “After many…