Sarah was born with arthrogryposis multiplex congenital (AMC), a rare disorder that severely limits movement and strength in her shoulders, arms, wrists, and hands. Sarah has learned to adapt to life by primarily using her feet and toes to complete…
“Most parents worry about how good a job they’ve done bringing up their children. But having a profound disability gives me some additional pause for thought.” Mike’s words echo the sentiments of many parents who live with a disability.…
A recent incident with her younger son jolted Tiffanie DiDonato, a mother of two, to recall the uncertainty that plagued her when she was first pregnant. Tiffanie has diastrophic dysplasia, which is a rare form of dwarfism, and having children…
“The most important thing I’ve learned from being a parent is to put my needs aside and put my family’s first.” Eric Anderson is the father of 3-year-old Miley Love. When he was 18 years old, Eric had a C6 spinal…
Being a mother certainly has its challenges, but it comes with great triumphs as well. And these constant, contrasting feelings of fear and accomplishment are not at all foreign to this mother with a spinal cord injury (SCI). As a C5-6 complete…
Adam has Osteogenesis Imperfecta, and for the past 5 years, he has been a frequent patron of a bakery near his house. And he usually can be found there with his “tiny entourage in tow” – his two young…
“I hate the word ‘normal.’ [Yet,] if I am being honest, I don’t want to redefine the word ‘normal.’ I am working on redefining myself." Jennifer Senda has cerebral palsy and is a mother, but these traits only make up…
Undoubtedly, parenting can be a tricky and difficult job for all, regardless of physical ability. As a disabled parent, you may face even more challenges, from learning how to take care of your children and meeting their basic needs to…
When Rachelle is out in public, she has received numerous stares, deliberate avoidance, and even people jumping out of her way quite often. She recognizes that much of these reactions are prompted by discomfort, and even fear, that is experienced…
“[Edward] is the adventure of a lifetime, and my biggest fear.” Being a mother is such a dear experience for Jennifer, who has cerebral palsy. As her 6-year-old son, Edward, grows up, he continues to develop an increasing interest in…