United Spinal Donor Privacy Policy

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United Spinal Donor Privacy Policy2018-12-23T02:47:50+00:00

United Spinal Donor Privacy Policy

Last update: 12/23/2018

United Spinal Association respects your right to influence how your personal information is used after making a donation. The following applies to all donors regardless of how the donation originated: Online website donation, social media, mailed check, e-check, credit card swipe, cash donation.

What Donor Information Do We Collect?

  • Contribution amount.
  • First and last name of donor and joint donor if any.
  • Donation frequency (if recurring).
  • Address.
  • Email address (online donations).
  • Telephone number (not mandatory).
  • Credit card data including: Name on card, card number, expiration date, verification code, address on card.

This information is used by our third party credit card transaction service to process donation(s) and to verify credit card data. We use your email address to send a tax-deductible receipt(s) (online donations only). Phone numbers (when submitted) are used only to contact donors if we need to verify information and occasionally to thank donors for a contribution.

United Spinal Association utilizes a secure third-party service provider for transacting and storing donor and transactional data. United Spinal Association stores no credit card information in their in-house systems. All transaction data, whether from an online donation form, e-check, mailed check, or card swiping device is securely stored by United Spinal’s third party transaction service providers and databasing service.

Use and Disclosure of Personal Information

United Spinal Association may on occasion rent donor lists to third parties that we feel engage in activities that are not inconsistent with United Spinal Association’s mission and core beliefs. The shared information will never exceed name and address of a donor. No other personal information is shared. You may opt out of having your Personal Information shared by United Spinal Association by following the instructions in the “Opt Out of Sharing” section below.

Except as described in this Privacy Policy or at the time we request the information, we do not otherwise disclose your personal information to any third parties.

Donor Access To Transaction Data?

United Spinal Association donors can contact United Spinal Association for any donor related information or to facilitate information changes by going to https://www.unitedspinal.org/contact-us/ where they can obtain a mailing address, phone number, or submit a contact form.

Online recurring donors (timed giving such as monthly, yearly, etc.) can access and change any donor information on a self-serve basis if they choose. All recurring donors have password access to their accounts for purposes of updating information, discontinuing donations, and for changing donation amounts and frequency.

Donor Privacy Policy Changes

The United Spinal Associations Donor Privacy Policy is current as of the date shown at the top of this document. If our policy should change, we will immediately update the policy along with the policy date.

Opt Out Of Personal Information Sharing

All of our donors have the right to request that their information not be shared. There are a number of methods by which you can opt out of information sharing. Whichever method is selected, we will require your name and address to accurately identify you in our database.

  • Use the form on the right for Quick Opt Out
  • Go to https://www.unitedspinal.org/contact-us/ and submit a request. Please select “Donor Relations” from the Category dropdown and include your name and address.
  • Call us at 718-803-3782 and speak with one of our staff.
  • Request an opt out by mail. Please include your name and address and mail to:
    United Spinal Association
    120-34 Queens Blvd. #320
    Kew Gardens, NY 11415
    United States

Spinal Cord Injury

Spinal cord injury can result in paralysis of the muscles used for breathing; paralysis and/or loss of feeling in all or some of the trunk, arms, and legs; weakness; numbness; loss of bowel and bladder control; and numerous secondary conditions including respiratory problems, pressure sores, and sometimes fatal spikes in blood pressure. Approximately 12,000 new spinal cord injuries occur in the U.S. each year. A majority of injuries occur from motor vehicle accidents, falls, work-related accidents, sports injuries, and penetrations such as stab or gunshot wounds.

Our Membership Community

Our membership community provides a lifeline for many individuals that are focused on regaining their independence and improving their quality of life––whether they are leaving rehab after sustaining a spinal cord injury, learning to live with symptoms of a spinal cord disorder, or have spent years of frustration coping with disability. We provide members guidance and resources on a variety of topics they are passionate about, such as employment, affordable housing, transportation, health care, home- and community-based independent living, education, peer support, and leisure and recreation.
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Ask Us

United Spinal’s Ask Us program connects you with information, resources, and access to our “Ask Us Spinal Cord Central” help center. Browse the Knowledge Books below for answers to your questions. If you can’t find what you are looking for just Ask Us and one of our knowledgeable staff will provide you with answers.