Incomplete Healthcare Makes For Incomplete Lives

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Incomplete Healthcare Makes For Incomplete Lives

United Spinal and its dedicated advocates believe that appropriate and complete healthcare and services are the foundation upon which people with a spinal cord injury/disease or a paralyzing condition can live productive and rewarding lives.

We have made an ongoing commitment to advocate for comprehensive and complete healthcare and service solutions for all persons with a disability.

Please take a moment to review these issues and then lend your voice and Take Action.


Affordable Care Act

  • We need prohibitions on denials of coverage for people with pre-existing conditions;
  • We need essential health benefits (EHB) plan requirements;
  • We need prohibitions on lifetime or annual caps on EHB; and,
  • We need network adequacy standards for qualified health plans to ensure consumers have access to needed care without delay: having a sufficient choice of providers (including providers serving predominately lower-income and medically under-served individuals); and making information available to enrollees and prospective enrollees on the availability of in-network and out-of-network providers.


Disability Integration Act

The Disability Integration Act specifies in Federal Statute that people with disabilities have a federally protected right to a real choice in how and where they receive community services and supports.

  • We want to have a real choice in how you receive services and supports without any discrimination;
  • We want to make sure that states and insurance providers deliver services and supports in a way that you choose – where you live and how you get your services and supports – so that you can lead an independent life;
  • We want states to develop plans to increase the availability of affordable and accessible private and public housing for individuals with disabilities.
  • We want the establishment of stronger, targeted enforcement mechanisms to ensure timely development and implementation of services and supports in agreed-to transition plans.
Take Action


Access To Rehab Manual Wheelchairs & Components

Congressional action is needed to ensure equal access for Medicare beneficiaries and others with significant disabilities who rely on individually configured complex rehab manual wheelchairs and components.

  • Stop endangering wheelchair users by placing them in less than ideal wheelchairs.
  • Stop Medicare from inappropriately using the Medicare Competitive Bid Program (CBP) pricing to cut payment amounts for needed wheelchair components.
  • Stop Medicare from treating components such as seat/back pressure relieving cushions, positioning devices, recline/tilt systems, and specialty controls as if they were luxury “accessories”.
  • Stop limiting access to manual wheelchair components that can enhance the overall mobility and health of the user.

Take Action


Empower Care Act

The Money Follows the Person (MFP) funding aspect of the Empower Care Act gets individuals with disabilities and seniors out of nursing homes and back in their communities.

Unfortunately, the MFP program expired in 2016. States have already scaled back their programs forcing many people to remain institutionalized.

  • We must allow people with disabilities and seniors the right to live in their chosen communities.
  • We must provide supports and services where and when they are needed.
  • We must allow people to be independent and to age with dignity.
  • We must provide long term care within the home for those who desire it.
  • The money must follow individuals to their communities and homes.

Take Action
2018-06-21T22:35:47+00:00Categories: Advocacy Action, Featured, National Advocacy|

Spinal Cord Injury

Spinal cord injury can result in paralysis of the muscles used for breathing; paralysis and/or loss of feeling in all or some of the trunk, arms, and legs; weakness; numbness; loss of bowel and bladder control; and numerous secondary conditions including respiratory problems, pressure sores, and sometimes fatal spikes in blood pressure. Approximately 12,000 new spinal cord injuries occur in the U.S. each year. A majority of injuries occur from motor vehicle accidents, falls, work-related accidents, sports injuries, and penetrations such as stab or gunshot wounds.

Our Membership Community

Our membership community provides a lifeline for many individuals that are focused on regaining their independence and improving their quality of life––whether they are leaving rehab after sustaining a spinal cord injury, learning to live with symptoms of a spinal cord disorder, or have spent years of frustration coping with disability. We provide members guidance and resources on a variety of topics they are passionate about, such as employment, affordable housing, transportation, health care, home- and community-based independent living, education, peer support, and leisure and recreation.
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Ask Us

United Spinal’s Ask Us program connects you with information, resources, and access to our “Ask Us Spinal Cord Central” help center. Browse the Knowledge Books below for answers to your questions. If you can’t find what you are looking for just Ask Us and one of our knowledgeable staff will provide you with answers.