Spinal Cord Injury

Spinal cord injury can result in paralysis of the muscles used for breathing; paralysis and/or loss of feeling in all or some of the trunk, arms, and legs; weakness; numbness; loss of bowel and bladder control; and numerous secondary conditions including respiratory problems, pressure sores, and sometimes fatal spikes in blood pressure. Approximately 12,000 new spinal cord injuries occur in the U.S. each year. A majority of injuries occur from motor vehicle accidents, falls, work-related accidents, sports injuries, and penetrations such as stab or gunshot wounds.

Our Membership Community

Our membership community provides a lifeline for many individuals that are focused on regaining their independence and improving their quality of life––whether they are leaving rehab after sustaining a spinal cord injury, learning to live with symptoms of a spinal cord disorder, or have spent years of frustration coping with disability. We provide members guidance and resources on a variety of topics they are passionate about, such as employment, affordable housing, transportation, health care, home- and community-based independent living, education, peer support, and leisure and recreation.

Ask Us

United Spinal’s Ask Us program connects you with information, resources, and access to our “Ask Us Spinal Cord Central” help center. Browse the Knowledge Books below for answers to your questions. If you can’t find what you are looking for just Ask Us and one of our knowledgeable staff will provide you with answers.
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Let’s Be Counted!

It is 2016 and it is still unclear, due to uncoordinated and old data, what is the number of people living with spinal cord injury and disorders across the United States. Knowing how many people are out there, helps us make sure that we are providing the appropriate number of programs and services and advocacy assistance for you, your family and your caregivers.

United Spinal supports the Advancing Research for Neurological Diseases Act (S. 849) which requires the U.S. Department of Health and Human Services to establish a centralized data collection system within the Centers for Disease Control and Prevention (CDC) to collect and aggregate data on the epidemiology of neurological diseases.

The Advancing Research for Neurological Diseases Act ensures that this data will provide a foundation for evaluating and understanding aspects of neurological diseases, (both CDC and the National Institutes of Health include spinal cord injury/disease SCI/D in their categorization of neurologic diseases including multiple sclerosis, Parkinson’s disease) such as:

• The natural history of neurological diseases;
• Demographics, such as age, race, ethnicity, sex, geographic location, and family history;
• Geographic clusters of diseases;
• Diagnosis and progression markers;
• Risk factors that may be associated with certain neurological diseases;
• Disease burden;
• Outcomes measures; and
• Research for the prevention, detection, management, and development of therapies

The bill does contain privacy and security protections regarding personal information.

2016-12-31T02:26:42+00:00 Advocacy, Featured, United Spinal News|